thank you guys (and others who might add to this message). as a mother of a 6 week old swcah son it is the most helpful to me to hear about adults with this. there is a lot of info about cah in textbooks, internet, etc. when it comes to kids, but not so much with adults. i agree, it does seem that treatment has been somewhat "fine-tuned" over the years. for the older cah’ers out there, thank you so much for all your input. i keep you all in my prayers!

louise f