Hi Lisa,

I didn’t even know what Cah was until I received letter from state informing me that Reagan’s newborn screen for came back abnormal. She does have enlarged clitoris and a fused shut vagina and for some reason the Dr’s and hospital did not catch it when she was born???!!!

No, I didn’t do DNA and figured out she was not salt waster because she had not had crisis before we received letter when she was about 4 weeks old. She only takes hydrocortisone 3 times a day.

We are going to see urologist next month to talk about surgery.....which I want to do before she is old enough to remember it! Fighting with Insurance Co. about covering her!

I would love to meet other parents and get these special kiddo’s together! So.......anyone reading this and are interested in getting together in Texas....let me know, would love to arrange a gathering!

Good luck and God Bless

Lesly