I have been writing and reading for about a month now.  I am learning alot.  I have 2 boys that both have SWCAH.  They were diagnosed at 8 and 12 days old.  They both were in trouble.  We thought normal, healthy boys, later discovered different.  Oldest is 13, he takes prednisone and florinef and yougest is 9 and takes cortef and flornef.  The oldest is really having a tuff time regulating his meds.  We are about to drive our endo. crazy.  His numbers are out of control about every other time we check!  They recently increased his prednisone to 3mg in morning and 4 at night.  Anyone that has any previous knowledge in this situation, please help!!! Also anyone in my area, let me know, Id love to talk to someone else.  Thanks ,,,,Angie