Hi,

Our son who is a NSWCAH used to get the same symptoms when he was younger. As he also got the shakes, I "treated" it by giving him  something to eat, usually a small chocolate bar, followed by a p/nut butter sandwich (similar to what insulin dependent diabetics eat when they are hypoglycemic).  Our  specialist said this was okay to do and it did seem to work. 

I don’t know whether it was a coincidence, or just better dosing, but the symptoms didn’t happen as often, after he turned 10.  He is a teenager now, on maitenance dosing, and only occasionally gets the headaches.  Now he has something to eat and takes a paracetamol tablet.