louise fhi lisa! i have read several of your posts and feel your frustration. my son is just 2 months old but is a definite salt waster. no question . is currently on .2 of florinef, but this is down from .3 at birth. i know someone whose little boy (a salt waster) was put on 10mg/day at BIRTH and is doing just fine. i think he was in the 8 lb range. hope this makes you feel better about your son’s dosing! email me anytime if you would like.
louise f