I am responding to your question about why endos don’t talk much about the sugar levels even though  I don’t know the reason.  On a thread a short while ago, people briefly mentioned sugar levels and I wanted to respond then except I am still not overly confident about my response.  Here is what I have learned, though.  After our daughter’s last crises (she is 21 mo and sw cah) we were issued a glucometer.  What I understand the reason for this is that, as we all know, no cortisol = hypoglycemia.  When we go in with a crises, they do blood tests and the things they check most closely is sodium, sugar, and hydration.   Well, I would assume if you were low on hydration and low on sodium, you’d probably be low on the sugar too since they are all being controlled somewhat by the same substance .  A sugar level of 30 and below can cause brain damage.   It has been hard for us to tell at times when she is tired because she isn’t feeling well, or is she so sick she is lethargic.  The glucometer gives us an immediate response to that question.  I can’t measure her dehydration very accurately (I look at her tongue and for tears).  I have no idea what her sodium levels are by looking at her either.  I like measurements and something solid to work with so I see this as another tool to help me help her.

Someone else said they were a sw and never had a problem with sugars, though, and you said someone mentioned their daughter was okay on hydration and sodium but had low sugars soooo...... with those comments I am at a loss.  Except to say that once again I learn that everyone who has CAH seems to have different symptoms with it.  Hence, the reason I am not real secure with my response but it has worked for us with our daughter so there it is.

Take care,

RebeccaM