New and have questions RE: late onset (non-classic) CAH
Mar. 20th, 2004   1:16am

Hi, this is my first post to this site.  I am a 33 y/o female.  All my life I’ve know something was wrong, but my small town Dr.’s ignored me.

Our town just got our first Endo Dr.  She doesn’t speak good English and I can’t understand anything she says to me.  I read my chart notes and this is what she dictated in my file:

She feels I have late onset CAH due to my elevated DHEA-S, hirsutism, acne, menstral irregularity (pain and passing out with menses also - maybe due to a tipped uterus), mother became infertil after I was born (she almost lost me), short-stature (5’2") and because I had an enlongated labia surgically removed at age 15.  The Dr. did not want to cut it off because he felt is was not a cancer issue.  I was not sexually active at age 15 and simply wished to look normal in the girls locker room.  Now, as an adult, I wish I had not done it because when I swell during sexual arrousal it is painful at the site of the surgery.  (ie - the Dr. removed to much of the skin).

I have been reading your posts with interest.  I didn’t even know what this disease was.  I now feel fortunate that I have a very mild form of this disease.  I still need lots of education and I’m mostly interested in herbs at treatment options.  I want this unwanted hair to go away.  Any advice?  I saw a post on Saw Palmento for hirsutism.  Anyone know how much to take and how safe it is?

My Dr. wants to run more labs a few days post menstration and then start me on 3 months of Dexamethasone followed by Spironolactone to block the testosterone.  Does anyone have any feedback on this method of treatment.  I’m a bit worried about taking these drugs as I’ve heard they are high rist drugs.  Is this information accurate?

The labs I will be taking (some are repeats) are:  17-hydroxyprogesterone, prolactin, LH, FSH, DHEAS and Testosterone levels, Fasting blood glucose, C-Peptide insulin level, estradoil test, FTI and TSH.  These are to be done fasting and a few days post menstration.  Does anyone know about any of these test - like what is she looking for and whatever else?

My chart says my DHEA-S is 560H, Testosterone 50 and Estradoil 45.  Does anyone know what these scores mean?

Also, any links to websites that would be helpful would be greatly appreciated.

Thank you,

Valerie

vjscott15@hotmail.com

Valerie
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