Cecily, there are lots of us!  When was your daughter diagnosed?  Salt wasting or not?  My daughter was diagnosed at the age of 3 and is now 15.  She was originally thought to be a non salt waster, but we have learned she is a slight salt waster.  She has done well with treatment over the years.

If you have any questions or just need support and understanding, this is the place to come.  There is a tremendous wealth of knowledge right here on this board.  Please don’t hesitate to post any questions or problems. 

By the way, where are you from?  I’m from the Richmond, VA area.