hi tanya! i am SOOO glad to hear your son is doing well. i know you are overwhelmed, but things will get better i am sure. my son is 3 months old with swcah. he is on 5mg TOTAL of hct per day and we , too, add 5ml of sodium to each bottle (which averages around every 4 hours). he is still on 1.5 mg of florinef, but we will be going down soon to .1mg. i think he is a little oversupressed (see my earlier post today), but we will see. please feel free to email me anytime and we can compare notes :)

congrats again on your little man!

louise f