re: 15 year old after 11 years in treatment now having trouble with med bringing down 17OH proges.
Mar. 30th, 2004   9:18pm

Marge

I guess I am just interested what your sons 170H level is right now. How is he feeling health wise? Does he seem to be tired or weak? What are is dossage levels and does he have SWCAH? I guess these are things I am interested in. I have never really heard of someone needing a lot more medication all of a sudden, guess outside me.  I had a 170H level that was almost 16,000 about two years ago. How does his compare to that. I have heard that between 200-400 is normal and anything up to 1,000 is acceptable. I am at 131 right now which I think is really low. These are just suggestions. I don’t want you to make any sort of decisions based upon what I am saying, just be careful that they don’t over due the medication and cause him to gain weight and become suppressed. I am just wondering has your son been taking his med everyday before the exams and does he have the test done at the same time each time? I am just trying to throw a few thing out there for you to think about. It seems weird to all of a sudden need more.  I needed more because I changed types of medicine and it wasn’t working and that is why my 170H level got so high. Feel free to e-mail me if you have any questions.

Paul

Paul
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