Hi there! This is Chad&Jenny from Indiana. We have a 9 month old daughter(Audrey:) with swcah. She has been diagnosed since birth. We just went through surgery a couple of months ago. We would love to meet other parents who have children with cah! It would be great to talk to you!! Feel free to contact us by e-mail! Our add. is chadandjenny@iwon.com  Hope to hear from you soon!! God Bless!!  Chad&Jen&Audrey:)