Hi Rebecca!

I did ask Loghyn’s ped endo about it because I’ve read so much about circadian rhythm & stuff.  She’s the same one who took care of her in the NICU also.  She said that since Loghyn has responded so well to the dosing & schedule of the pred she was reluctant to change and that if that ever stopped she would consider it then.  Her growth has been good & her labs have been pretty much right on track with her growth (you know . . . raising as she gets a little bigger)  We just recently moved and have an appt coming up soon with a new endo so we’ll see what she says.  I just tried calling for her labs again and they’re not back yet.  Hopefully soon though!

Thanks for asking! And I hope what I said was useful.   It’s so hard when all of this seems to be half a guessing game! 

Love & blessings, Jess