tonyadid you have a stim test? if it was me, i would request it to be done. the same kind of thing happened to us, they told us that it was a false postive and not to be worried. we pushed for more stuff and had the stim test done, and even the genetic testing done. turns out our child had nccah, he is currently on no treatment. but i guess it just makes you feel better to know one way or not. so that you don’t have to worry about it forever and make your self sick.
you don’t have to go through your endo to get genetic testing, you can get you reg ped to order the test and have it sent yourself.
take care and best of luck
tonya