Hi Robert -
Congratulations on your newborn. I will pray and wish you well in your new child’s medical hardship.  My sister recently gave birth to a SWCAH baby girl and I am very concerned about her condition. I don’t know much about this medical condition and was looking to learn and perhaps comfort my sister with some ideas on this new life.  Can SWCAH babies experience normal lives, and will their be obvious differences while growing up ? I did recommend to my sister that noone know of the medical condition but her siblings and parents,, that noone should make this baby feel uncomfortable while growing up, do you think that was good advice?

Thanks again for posting your very encouraging message.