Hi Sara,

Congratulations on your baby girl!  It must be tough having to deal with with all these CAH issues along with all the stress of being a first time mom.  I have a son with CAH (he is now 4 years old) and I was grateful that he was my second child.  I think it would have been more stressful if he had been my first. 

What part of Atlanta do you live in?  We live in Fayetteville.  Since I have a son I have not had to deal with any issues of reconstructive surgery.  I love my ped endo (Dr. Quentin VanMeter) but he is located in Peachtree City which may not be convenient for you.  I took him to Emory once but the whole experience was awful.  It was probably just an isolated problem, but I haven’t been back.  I am surprised by how few pediatric endocrinologists there are in Atlanta.  My son’s next appointment is June 9th.  If that’s not too late I would be happy to ask my doctor if he has an opinion about reconstructive surgeons in the area.

Kelly Leight at the CARES Foundation maintains a database of physicians and people’s opinions of them.  She is a great resource.  I believe there is a link to the CARES website from this board.  Let me know if you have any trouble finding them and I can send you their phone number.

Please feel free to e-mail me anytime if you want.  I thought I would never survive the 1st few months after my son was diagnosed.  But now, I hardly ever even think about CAH.  Marcus is a very healthy, happy, normal child.

Good luck!