We have quite a bit of information right here. The links at the top lead to pages with information, links answers to frequently asked questions on the message board (70,000+ messages at the time the FAQ was compiled).

The Magic Foundation, for some reason, is often referenced as the first place to go about CAH, but there are quite a number of other sites that have a lot more info. After looking through this site, the Cares Foundation would be a big help. The Texas Department of Health also a really good CAH site.