re: My niece was just diagnosed with CAH
May. 10th, 2004   10:07pm

rob,

first CONGRATULATIONS on your niece!!!!!  I have a 5month old daughter with salt wasting CAH...Born with ambigious genitalia.  We were first told "It’s a BOY! oh wait...um, we are not sure if the baby is a boy or girl"  It was confussing, scary & lonely at first.

The baby will go on medication like Julia stated & those first few weeks will fly by with doctor apointments to check on her levels, her weight & just her general "newborn" issues.  It’s a lot to take, but you learn real fast that this wonderful child is just that. a wonderful new addition..yeah there are issues to be addressed but to tell you the truth my daughters CAH is no longer the first thing I think of when I look at her.  I see a little bundle of energy trying to crawl way to early for me!

This site is amazing, you don’t feel so alone anymore.  If your sister wishes to talk to a mom who has been there a short time ago, e-mail me & I would love to be there to help her with this..  rn4kidz@hotmail.com

Jessica K.

Jessica K
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