Louise,

I have a 16 month old SWCAH son that was 6 lbs 12 oz at birth and then by 5 months was 18 lbs.  He was huge.  He was also on a low dose and labs were fine.  As soon as he started moving he has thinned right out.  He is still short (only 29 1/2 inches) but he still weighs just about 20 pounds.  He went from being in the 75th percentile in weight to falling off the weight chart in the last 8 months or so.  He looks so healthy and is dong very well.  He is just now on 5mg of cortef.  I wouldn’t worry yet as long as the docs aren’t.  If you have any questions feel free to email me.

Take Care

Tammy