Jennifer can I ask you why your daughter takes fludrocortisone as well as hydrocortisone if she was only borderline in her diagnosis?  As far as I understand (could be wrong on this) it is only difficult to control patients who are not salt losers that take fludro.  How are her levels now and her renin levels? I do feel for you and empathise, you could always get a second opinion to put your mind at rest.  Good luck and please let us know how your gets on.