re: re: how has cah changed your life
Jun. 2nd, 2004   9:45am
My daughter was born with swcah 9 1/2 years ago.  When I think back, I remember the complete despair we felt.  The lack of knowledge was horrifying.  Today, I would love to walk her into the hospital room of any new born baby with CAH to introduce her to the parents.   She is NOT a normal child in our eyes, she is AWESOME.  She is smart, sensative, healthy, confident, and incredibly athletic.  She has many friends, both girls and boys.  With regular endo appointments  she has been very healthy.  We have had our scares also- emergency room visits when she danced through a window at 3yrs and again when she broke her leg while playing football with her younger brother at age 5.  In the last year, she has also been diagnosed with growth hormone deficiency and precocious puberty. For the GHD we give her a shot 6 times per week and for the PP a once a month injection was prescribed.  She is still doing GREAT.  I will admit, the nightly shot was hard at first, now its a piece of cake! Just a part of our routine.  After not growing at all for 2 1/2 years, she has grown 6 inches in the last year.   The important things are to stay in tune with your child, keep doctor appointments, and enjoy your child.  The advances in medical technology are a miracle, use them! My daughter knows that she is "special" and needs to pay attention to her body, but that we will not let that hold her back from her dreams.  She just recently tried out and was selected for a Division I soccer team with girls that are a year older than her.  She was so proud, as were we!  Our lives were changed when our daughter was born, CAH or not.  Children bring so much happiness-I can’t imagine what our live would have been without her and my son.
Kimberly
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