Jessica

You are so right!!!!!!!! Its all about the disorder. I wish they would of had the newborn screening in place when my grandson was born. He also is SWCAH. We almost lost him because no one could find out what was wrong with him.  He came home at 3 days old. At 7 days he was in intensive care. Thanks to a wonderful hospital staff he is 7 yrs old now.  This has been hidden for too many years. Thanks to people like you and Thanks for the Cares Foundation!!!!!!!!