Sounds to me like the FAMILY is more worried about themselves than the person with the condition, you daughter.  Ever ask them if they are embarrassed?  Just tell them all thats its about her not them. Tell them that your job is to make choices for her until she is old enough to make them for herself and that you are her biggest advocate.  Someone has to stand up.  Without screening and treatment they wouldnt have a granddaughter/niece to be worried about.  You stand strong! For all the CAH kiddos.