I applaud your efforts in public awareness of CAH! Yes... people can be so disinterested in the REAL issues of CAH. The fact that they want to treat it like a dirty little secret scares me, for you and your child. They are your FAMILY....... they should be supporting you through this time of educating yourself and  your family about CAH.  Thank God !....... We have the support system of this wonderful board and friends that use it and help to educate each other on issues on CAh and MATTERS OF THE HEART such as this. Feel free to vent as needed and always know that you are not in this alone. I think a nice little heartfelt note written, expressing your hurt and disbelief of there actions might help. Tell them this is your child and under NO circunstances are they to EVER whisper or discuss her illness as if it is disgraceful. What kind of Grandparent could do this? I love my Granddaughter for who she is and the love she brings to me. The thought of her genitals and CAH have no bearing  on how I feel. If anything it makes me realize how special she REALLY is and how blessed we are to have her. Maybe they feel they need some time to accept this disease. Tell them not to wait too long as precious hugs and kisses from sweet babies go way too fast.  I will pray that you find the inner peace to deal with your frustration with them and for them to open there arms and heart to this wonderful little child. Cherry