Just a comment about pediatricians not being all that familiar with CAH.  My daughter was born slightly virilized.  We knew she was a girl, but we questioned why she looked the way she did.  They had no real answers and that was years before newborn screening in Virginia.  Well, that went on for 3 years.  When I would question her pediatrician his response was that I was just a nervous mom, after all it had been 10 yrs since my son was born and I only have the two children.  He went on to say that while she looked a little different, he thought she was just the "extreme" end of "normal" and not to worry about it.  His advise was to just calm down!  Finally she was sick one day and after his partner (a much older dr who had actually treated my son when he was small) had finished looking at my daughter’s ears and throat and was writing a prescription, I asked him to take a look "down there".  He immediately told me he thought we should see an endocrinologist and we were there within the week.  She immediately said she suspected CAH and started testing.  We found out pretty quickly.  Since all of this, the older dr. has retired and the practice has greatly expanded, adding about 5 new doctors to the group.  There is ONE in the whole group who is familiar and actually has a pretty good knowledge of CAH.  Needless to say, we ask for him all the time now.  Later I was told that the original dr my daughter was seeing had NEVER seen CAH before and his older partner had come across it only once before in all his years of practice.  Apparently it’s one of those things they gloss over in med school.  Luckily she was diagnosed before she had her first big crisis which was probably 6 or 8 months later.  While diagnosed a non-salt waster, even that diagnosis has been revised to a slight salt-waster.  I am telling you all of this because you have to trust your instincts with CAH.  I am grateful that we saw the older dr that day and could start treatment before anything happened to my daughter.  But, I am very frustrated by the lack knowledge out there in the medical profession.  I have learned far more about CAH from this message board than from doctors and nurses.