My levels were always high when I went to pittsburgh for the hospital visits. They would always therefore increase my prednisone. I wonder if the levels were high then because I would be extremely, and I mean EXTREMELY upset the day of the hospital visit and for a period of time about a week before.(I would have nightmares before I would go). I wonder if that stress caused my levels to be high. When I finally went to an adult endo. they said I was very oversuppressed and changed my meds to dexamethasone and to a much lower dose. I had bad withdrawel symptoms from cutting the dose. Now my levels have been for the most part good, but I still don’t have periods. I’ve never had periods on my own, only when I’ve been on birth control pills. Oh, by the way I have salt wasting. The doctors say everything must be fine with my reproductive system since I had periods on the birth control pills. So no explanation except the cah. The doctor’s just don’t seem to enthusiastic to help though. Perhaps it’s because it would be considered a high risk pregnancy because of the cah. But I have given up because it’s been such a horrible emotional issue. I feel like it’s part of my life taken away because of the cah.