Tab,

When our daughter has a crises, her blood sugar goes down to very dangerous levels.  I don’t know what exactly you mean by a seizure because in our daughter’s crises, there isn’t any attacks or spasms.  In fact it is just the opposite, she becomes quite lethargic with little to no movement.  She usually ends up at the clinic by that time with IVs in her arm for hydration with a sugary water and solucortef or solumedrol drip that increases the blood sugar levels.  We have been given a glucose monitor by the doctor to measure her glucose levels.  We use it as an additional tool to see if (in her fever, vomiting, and diarreah illnesses) she can be rejuvinated by the normal  increase in her cortef and given small frequent sips of liquids like gatorade or even koolaid without having to go to the doctor.  If we see that the glucose level is already too low we get her to the urgent care immediately.   That doesn’t work for everyone but it seems to be able to work with our daughter.  

In the most recent CARES letter mentioned earlier on this page

http://caresfoundation.org/news_letter/Spring-Summer%202004%20Newsletter.pdf  in the article regarding exercise, on page 4, there is mention of this topic saying 

"In general, children are more vulnerable to low glucose levels than adults and their body stores of glucose tend to be lower. CAH patients, particularly children with CAH, might be at increased risk of low glucose during prolonged physical stress. We currently recommend carbohydrate intake prior to prolonged exercise. We also recommend glucose containing fluids (i.e. not just water) during exercise. During illness with fever we also recommend carbohydrates (such as crackers), and glucose containing fluids, in addition to the standard "stress" doses of hydrocortisone. "

If you don’t mind explaining, perhaps you could describe what you mean by a seizure in case I am missing one in my own child.

Thank you,

RebeccaM