hi! just wanted to thank everyone that posted before about this. today was a total disaster! here i am waking up every hour last night to make sure my 6 month old swcah son was still breathing b/c we held his cortef for 24 hours. we make it through the night with my eyes practically swollen shut, i drag us both to the endo by 7:30 am, and we start the process. joey is as happy as a clam and i am half dead. they stick him 6 times to start this acth stim test and draw blood for dna testing and never get a drop. a COMPLETE waste of time and effort. i made the executive decision that the acth stim test will not be done and we will come back in next week for the dna testing.  as if this wasnt bad enough, my endo’s office staff really stinks. no hugs "i’m sorry" or anything. in fact, the doctor never even comes in to see us. we just leave there. me with my head hung low and joey dripping in sweat from 1 hour of screaming his head off. interestingly enough, the lack of cortef didn’t seem to bother him one bit. he had as much energy as any other kid getting poked around. anyway, just had to vent to those that i know understand!!

louise