Amber,

I know exactly what you’re going through.  My biggest thing was "How do I know if she’s vomiting or just spitting up??  And how do I know if she’s lethargic . . . she’s a newborn!!  Newborns sleep a lot, don’t they??"  Oh it was so frustrating . . . and after just giving birth too.  But it’s lethargic when they’re awake . . . or unable to be woken up that you need to worry about.  And some wise father (I can’t even remember his name now) of a CAH child told me this about the vomiting . . . "Take a 1/2 cup of milk & throw it on the floor from about chest level . . . THAT’S vomiting!!"  That’s one of the greatest pieces of advice I got regarding that. 

Do you have the solu-cortef injection?  If not GET IT!!  I haven’t had to use it, but it can save your babies life during a crisis!!  If your endo doesn’t want to give it to you . . . find a new endo.

And it is CERTAINLY not your fault . . . it’s NOBODY’S fault!!  It’s so hard to make yourself believe that . . . but it’s true!!  It’s just a genetic defect . . . there is nothing that you could have done to prevent it.  The chances that you & your baby’s father both had the recessive gene and that you would get together & BOTH pass it on to her is something like 1:15,000!!!  Just the luck of the gene pool!!  It’s not like you took something or ate something wrong or anything to cause it.

Keep researching . . . that’s the most important thing.  And NO question is stupid . . . NOTHING!!  If you don’t understand or have a question you can’t get answered ASK IT!!  The people on this page are so supportive & helpful.  I thank God every day for the wonderful parents & CAH adults & children you’ll find on this page.

Jess