i have a 14 mo old swcah i have been reading this board for about 2 weeks now and i thought the drs explained everything to me about his cah but from what i have been reading they havent.  i feel like i need to know more and i also feel like i may never know enough.  some of the sites i have read use so many medical terms and you need a medical dictionary or degree to understand.  i have checked the cares foundation that is one of the first sites i went to.  i did get a bunch of info from them.  my son was diagnosed at 6 weeks of age so we have been dealing with this for over a year now but it is kinda scary reading this and all of the horrer stories about drs in emergancy and nonemergancy situations dont even know about cah.  kinda crazy i think.  some of you have had dna testing and acth stim testing they have not done this for my son i also have 2 older girls who i and their ped want tested to see if they are carriers or not but the endo keeps passing it off as if it is unnecessary.  i want to know for their future children.  i have heard our endo is very good and came highly reccommended but yet i feel like i need more info or somthing i just dont want something to get missed and it didnt need to.  i have learned alot from this board but yet i read things and my son doesnt fit.  i have read about cah kids eating alot or being hungry, not my son he almost could care less if he eats or not. but i guess thats how all 3 of my kids are.  sorry this is long i guess i just wanted to get some of this off my chest. 

thanks