"We are one organización of Parents with ill children of HIPERPLASIA
SUPRARENAL CONGENITA, at the moment we tried to help and to inform to
us into which means this disease in our País (CHILE) does not exist
sufficient información and less it is considered in the programs that
the Chilean state to implemented to cover some expenses since it makes
with other diseases in the denominated PLAN HEIGHT with which the
system of Health cushions the expenses of the patients to be made its
treatments and operations; ours interés to communicate to us with you
is simply for asking for información and helps to him, our
denominated Organización Agrupación de Familiares and Amigos of
patient Hiperplasia Suprarrenal Congénita HSRC, who is located in 9
orients 781, Talca, Chile, has approximately 60 patients of this
disease, of which mayoría is of limited resources, adem s to accede
to the medicines which the niños and niñas must take must resort to
commerce since the Hospitals not est n in conditions for supplying to
the niños with necessary medicines that they require, without telling
that it lacks itself professionals who specialize with the disease. On
the other hand single in our city (Talca) We are organized and many
Parents ramble by the Hospitals soliciing the aid so that the niños
do not die at moments that undergo a crisis. Hoping that ours
petición has a good welcome on the other hand and if is not possible
we requested you to indicate some to us dirección where to ask for
our aid; without another individual one takes leave kindly of you.

Agrupación de Familiares and Amigos of patient."