I hope this translation helps

 

We are an organization of parents with kids suffering from CAH, we currently seek to provide help and obtain information about this sickness. In our country (Chile) there is not enough information and CAH is not included under the health care programs that the Chilean government has implemented to deal with several other sicknesses under the so-called AUGE Plan, a plan that helps to cover the expenses of diverse treatments and surgical procedures.  Our goal is to get in touch with you only to ask for information and help.  Our organization, named Agrupación de Familiares y Amigos de Enfermo Hiperplasia Suprarrenal Congénita HSRC, is located in 9 Oriente 781, Talca, Chile, and it has approximately 60 members who suffer from CAH. Most of our members have limited economic resources and more often than not to get the necessary medications, particularly for kids, we have to directly go to for profit providers given that public hospitals are unable to supply these medicines and that we do not have access to physicians specialized in CAH.

Additionally, in our city (Talca) we are organized but several parents still need to constantly knock the doors of public hospitals asking for help so that their children do not have to die in the midst of a crisis.

We hope that our petition is considered but if this is not possible, we would be grateful if you could tell us where we can obtain some help. 

 

With kind regards,

 

Agrupación de Familiares y Amigos de enfermo

 

VALESKA ROJAS

PRESIDENT