LauraBetsy,
Ghetto-ization? WOW, never thought asking people some helpful information to others would be so offensive by the choice of word you choose to describe it.
Danny,
A BOOK! What about? You are writing a book and manning the board. Whew! I think perhaps you could add a bar as an OPTION explaining that including this information is not a requirement as including your email address. I consider this board not only a place to come for support but also for education of CAH. OR you can choose NOT to add the bar and let people ask which could be the better solution. Although poor choice of words used by Betsy, she does make a valid point that some may ignore a post because they think it only pertains to one type of CAH and not theirs or their child’s. Yet in the same sense I hate to not see the differences between the CAH TYPES and how people react to them. Maybe there are not many differences but I think it would be educational to see and helpful down the road in treatment. Never were my intentions to seperate, offend, or scare off people. Above all, nor did I consider it "slotting" off people. I was ASKING what type of CAH a person or child has. It sounds cold and unconsiderate saying I was trying to "slot" off people. I am not asking to lab rat people. I am asking on behalf of my daughter this information. Not a lab rat. It was just a simple idea to find out more about our children’s disease so we can help them find better treatment.