I have had the same problem.  Ashley’s temp was at 104.2 and she was very listless.  I could not get her to respond to me by the time we made it to the ER.  I informed the nurse and the doctor to look at her medicalert  bracelet but they would not do it.

they just kept saying that they knew what they were doing and that I did not because I was young and inexperienced.  My mother is a nurse and I had my husband call her to come to the hospital.  They weren’t even putting her on an IV and they weren’t even ordering a check of her electrolytes.

My mother came and raised hell in that ER.  While she was doing that my husband called her pediatrician and the answering service paged him right away.  he came to the hospital and raised hell right along with my mother.

i have been blessed to have a pediatrician that specializes in diseases, illnesses and growth disorders of infants, children and young adults.  He just so happens to have another patient with CAH.  Of course now that patient is full grown and Ashley is his only patient with CAH.  But those two were the only people in Santa Maria with CAH.  Our hospital is very uninformed about these things.  But her pediatrician made it clear that day that they were to keep a file on my daughter in the ER.  He also gave me a direct line to him so that if we end up in the ER again she will be treated better.

She ran a temp like that just one other time.  We walked in, they checked her file, they called her pediatrician, they started an IV and they admitted her.  it was definelty a better experience.

Complain to who you have to in that hospital to get them to wake up and hear what you’re saying.  But also enlist the help of your doctor.  Sometime’s a doctors voice is louder than a parents.

good luck we will pray for you.

Lisa V.