I will try to post this one more time.  I tried 2 other times but my  mom and I can’t figure out what the problem is that keeps making my posts disappear - maybe it’s magic. (ha - ha) 

I want to tell any kids that are going to be at the Cah picnic next week end I am really, really, really excited to be meeting other kids who have Cah.  My sister wants to meet all the kids.  She doesn’t have Cah but she has it on one spot on her genes.  I have it on two.  She helps me when I’m sick and gives me gatorade to drink.  She is 10 years old.

I hope lots and lots of other kids will come to.  If you want to talk about it you can email me or my mom.  She has all the facts about it. I think it is gonna be a awesome day.  Do NOT forget to bring your swim suit and a towel for when we go to the beach and the water station. You can see what Quassy looks like if you put your computer on www.quassy.com and look at the different pages.  My mom says we still have room for more families to come.  You could just ask her.

See you soon.

Ryan T.