Bill, My son was dx with CAH in 1982.  I never hear of the birth defect and didn’t have a clue what an adventure we were about to step into.  I gave permission for my son to be on a research grant at All Childrens Hospital In St Pete, Fld.  Sometimes I look back and wish I had never done that.  It was so difficult for him to handle.  As it turned out he had a superman complex.  What he couldn’t understand at 3 years old was drawing blood wouldn’t hurt superman.... I’m so big why does it hurt.  It would take 10 men to hold him down to draw blood.  He hated anyone in white, especially Nurses.

He was very mature for his age and very, very bright.  He was reading at 4 years old.  All of his life all of his friends were 5-10 years older than him. 

I look back at it now and there are somethings I wish I had done differently but once I accepted his birth defect and seem to be easier for him to accept too. 

I don’t know if this helps or not... Just remember there are parents out there that have gone though what you are going though...You’re not alone.

For years I thought my kid was the only one that had this... When he would change schools or we would move I would go though all kinds of problems getting administrator to agree to give him his meds.