It is a great site.  Thanks JanetD!  I also just read the kids message board for the first time.  I plan to look at these sites with my daughter tonight after work.  She was excited to do this together.  My husband suggested we ask the ped endo to talk to her more directly at a level she can understand, and I will help her make a list of questions for the doctor, as we do, before her visit next month.  Since the CT gathering was so successful, I wonder if a NY/Long Island gathering could be successful?  My daughter would love to meet other kids with CAH.

Pamela