Hello Jennifer.  What you are going through sounds very frightening.  I will keep you all in my prayers.  Christi had high blood pressure, and same as you, no one really said anything about it.  I pressed and finally after weekly visits of returning to the doc and checking her bp, I insisted on doing something about it.  Her florinef was lowered and within weeks her bp was terrific.  I know that Christi’s bp was high for quite some time, how did they determine the walls of your daughters heart were thick? 

Keep us posted.

K