You have my deepest sympathy on the loss of your Daughter. You are right...... NO ONE can understand the loss of a child unless you have experienced it. You are so brave to share your story with us and to enlighten us with the facts that this is not a disease to be  taken lightly. I agree with you.......... EVERY CHILD should be intitled to health care / meds and In my opinion SSI. I am raising my Granddaughter after her mother passed away with cancer at the age of thirty. I am going to use every resource possible to give my baby the  basics that her Mother would have wanted for her. Thank you for the insight and for giving me the courage to continue to fight for her needs to be met!

                                                     Sincerely Cherry Lane

 I am sure you miss her every second of every day! My heart feels for you. Feel free to share your pain with this board ANYTIME. As we are all in this together and we are all here for each other.