Hi everyone. This is my first post as we just got a diagnosis today. My 6 month old son Logan has the salt wasting CAH. He was born perfectly healthy - or so we thought- at 8lbs, 5oz. At 6 weeks he was only 7lbs. We took him to the ER at our local hospital here in New Brunswick, Canada. He was admitted for dehydration. We stayed here int eh hospital for one week, then were transferred to the IWK in Nova Scotia and stayed there for 4 weeks. We’ve been through many different diagnosis (probably 15) and they have finally decided that this is it. I am scared to death. Logan is doing excellent right now - gaining weight and developing perfectly, but I dont know what to expect in the future and dont feel that my questions are being answered satisfactorily by my sons doctors.

Please tell me where to look for more information on CAH. What can I expect in the future? I’ve been reading some posts and my heart goes out to you who have lost your children. I was not aware that this could be a possibility when on medications.

Please help.

Thank you