Any tips on putting together a "Tell All Folder" about CAH for family/friends?
Aug. 1st, 2004   7:55pm

My mother in law really has no clue about CAH, except for some general details. As well as some other family members. And she’s had other family ask her about my daugthers condition and I want to make sure she can explain it right.

I remember a few weeks or so ago a Grandmother (I believe) had put together a booklet type thing for medical personnel etc on CAH. Along with an emergency letter from the endo etc. And I have been looking around on this sites links thinking it would be a great idea for me to do that as well. The more I can educate people on CAH, the more at ease and happier I think I would be.

Can anyone tell me what I should include in the booklet/binder?

Sherry

Sherry
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