Michelle,

How devastating. Is it not enough that CAH is rare enough for people to be basically "guinea pigs" when it comes to dosing and not knowing how the condition will progress/present? Do people not get that CAH is a condition and that people that have it are PEOPLE first and foremost and deserve the respect and privacy that anyone deserve? I did have a similar, but much less unprofessional experience at my pediatrician’s office....but it was done for the opposite reason and actually did end up making my daughter and I feel better, not worse.  After Chelsea was diagnosed, she became the "talk" of our pediatrician practice as she is their ONLY patient with CAH, but they do have a nurse who works there who has a very very mild form of LOCAH (it manifested much later in her life than in my daughter’s). In front of everyone in the office and whoever was in earshot in exam rooms my daughter’s pediatrician introduced my daughter to the nurse and explained that they had the "same" condition. I think at that point, I was still so in shock from finding out my daughter had CAH and not knowing how to deal with it that I was just glad to meet an adult with it who I could ask questions to. I did not consider the inappropriateness of the way the conversation took place. Looking back on it, it would have been more appropriate for the nurse to have been introduced to Chelsea in private. I now only use that pediatrician for giving Chelsea her monthly Lupron injection, and for very minor issues. For anything else, we make the over 1 hour journey to the hospital where her Endo is.  It is difficult enough to deal with people who do understand CAH, but to be expected to be "on display" for those who are learning is too much. It is one thing to ask if you wouldn’t mind, but to just be exposed is truly inappropriate. I wish you lots of luck.