i am so sorry that you are going through this. it is difficult enough to have a child with special health needs, much less to have family that clearly doesn’t understand. if i may give advice here, there are many others out there (myself included) that appreciate and support all efforts towards cares and cah. it truly is your mother’s loss that she is not involved. you are doing what every responsible and loving mother does.  keep up the good work and keep your chin held high. your daughter will admire and thank you one day :)

louise