CAH, Cancer, and Celiac Sprue. Yes, the c’s haven’t been good to me ( lol) Oh yeah, I almost forgot and I was also born with ambiguous what the heck is that genitals. Had surgery, for good or bad (lol) to match my external with my female chromosomes and for menstruation.

Your post made me smile but it probably wasn’t supposed to! Sorry, I looked at this from a different perspective. Parents will look at things one way and kids another way. Maybe, she is trying to be protective over her granddaughter and isn’t it GREAT ! that she is alive, strong enough today and you two can argue back and forth about it? She got to say what she got to say and you got to do what you got to do (smile) thats what makes the world go round and the wheels on the bus go up and down.

The cancer recurrence must be frightening and I could see how she wants things to be the same and maybe if you weren’t wearing the bracelet shifted a sense of "the way things should be" She can’t even wear the yellow bracelet ? and now the open support for CAH? I love my granddaughter but THAT genital part doesn’t need to be brought up. 

I had cool grandparents, tough, good stock people but I remember my one grandmother patting me quietly on the knee and asking me to tell her if I needed help with my "little problem" she was referring to the CAH. It was caring but it was done on the hush, hush side.

I like this message board and I like CARES FOUNDATION. It’s great to see how much CAH knowledge has progressed since I was born. The whole genital thing is a delicate situation, people are funny about stuff but when you explain how/why the ambiguous genitals came about....cortisol,  who knew ? then maybe more people might become comfortable with it. 

PEACE,

Yesterday is gone, We have today, and tomorrow hasn’t happened yet.

aimee b. bird