Hi Everyone,

I’ve been wondering how to go about starting a support group or how to even find others in my area dealing with CAH and/or Precocious Puberty (or both as in our case!).  I think it would do my daughter’s self esteem a world of good to meet another child with CAH. She has days where she feels like she’s the only kid in the world that has to deal with the meds, the blood draws, the Lupron shots, the low blood sugar episodes and all the rest of the stuff she deals with. These days are tough, and to be able to talk to another kid would help her out a lot I think. I tell her she’s not alone, there are lots of others, and that things will be ok, but I’m MOM and I have to say things like that. She is still kind of young for the kid’s forum here and it doesn’t seem to be all that active anyway, so I really would like to find other "real" people for support. Any suggestions on this would be really helpful.

Also, has anyone else dealt with the issue of other parents being reluctant to take your child on sleepovers? Chelsea has a really good friend and before she was diagnosed they swapped sleepovers a couple of times a month. Now the mother seems very reluctant to take Chelsea and has started to pull back on allowing her daughter to come here as much too....I sent her an email today confronting her on the issue and explaining that it is safe for Chelsea to spend the night at her friend’s house, she just needs to bring her meds with her. At this point in Chelsea’s life she needs her friends and this is distressing to her and to me. Any input here would be appreciated.

Thanks,