I too have the neglect issue for my Granddaughter..........unfortunately this is with her deceased Mothers family. Her Mothers sisters (Aunties) have NEVER once offered to have her over or take her  to any of the outings the other cousins (boys) go too. Her other Grandmother comes to town and takes the boys to movies and out to eat and Chucky Cheese and NEVER is Maritza invited. She is only 3 1/2 right now and we make excuses for them ..but what to do when she gets older and KNOWS that she is being excluded will be tough for her....especially since one of the boys is her 9 year old brother. I have told this family they can take Maritza whenever they want. But no one seems to want or care about her. This hurts me terribly and I will be livid the first time I see the pain in her eyes. I can’t force the Aunties to have a relationship with her..... I just THOUGHT Maritza being there sisters daughter they would naturally want to be around her. We EVEN moved from Ohio to Virginia so she would have extended family and we would have help in raising her. But none has come forth and we are doing fine... I just don’t want her to be excluded in things. Do you think it is REALLY the fear of CAH? Should I confront them head on and see why they don’t include her in the outings? (before she gets hurt) I can’t believe someone would be so cruel to a child Healthy or CAH. I hope that I raise Maritza to enjoy and to include all kinds of people in her social world. Just because they have an illness does not mean that there little hearts don’t hurt like the rest of the worlds. I know we can’t fight all there injustice away ... but I will pave the way as much as I can for her and as long as she will let me. I would check the  local hospitals and see when they have story time or group sessions for the children and possibly take her and let her see that she is not the only child that is sick. (not in an area that would be contagious of course) Possibly nursing homes where people are so lonely and begging for attention and let her be a joy to others. This is what I will be doing if her OTHER family does not step forth and partcipate in her life. I will make sure she has an extended family/ friends  somewhere. Sincerely Cherry Lane