I find this so hard to understand, aldosterone is the hormone responsible for maintaining sodium, the only thing I can think of, is that people who stop it, either get enough mineralocorticoid from hydro if they take it, or they do make some level of aldosterone!  Fludro replaces this missing aldosterone so if the body doesn’t make it at all (complete deletion of the gene) - then how can one just stop it?? Sort of makes a mockery of the treatment of CAH and makes me wonder if they really do know enough about CAH! There has been papers written about high blood pressure and CAH, so it is common.  I would want a 24 hour b/p monitoring before stopping it.