I have not been satisfied at all with my endo within my state.  First because I had to make about 6 or 7 calls to get the emergency injection and finally had to go into the office for an appointment before I got the prescription.  Then she just wrote me the prescription I didn’t know it wasn’t like an epi pen.  Then of course since I am farely new at this I didn’t know how often she was supposed to have her blood pressure checked.  When we went in for her surgery at Riley hospital in Indianapolis her BP was 168/120!  Yes I know it sounds impossible but I we had doctors coming from all directions once they took her blood pressure.  My daughters endo in my state had her on 4 florineff a day.  The endo I consulted in Indy that was taking care of her for the surgery said that was a very large amount and was the reason for the high blood pressure.  I have an appointment in October with another endo in his office that has an interest in CAH patients she is pretty well know in Indy.  Until I have this appointment this endo in Indy has been working with my pediatrician and we have already taken her off of 2 of her florineff and her blood pressure is alot better.  That is going to be my first question when I see the new endo.  Even adults are starting to make comments on how she looks like she has bad acne.