AmberJennifer,
My daughter was born on june 9th and her newborn screening showed that she DIDN’T have CAH. I took her to the ER 3 days after she was born and they did an electrolyte test on her and found her salt at 114. She was rushed to the Cleveland Clinic Children’s Hospital where she was diagnosed with CAH. I’m still questioning if she has the CAH. Her ped said it should have shown up on her newborn screening. I can’t seem to get any answers from the doctors either...needless to say..i share your concerna nd pain.