I recommend Children’s Hospital of Akron Ohio. My daughter who is 7 and she is has SWCAH too.  She sees Dr. Anzar Haider there. We have been extremely happy with him. My daughter has seen him since she was first diagnosed there. AND they have an awesome lab there. I know the perfect lab tech. that draws blood so good!!!!! My daughter has seen her since she was an infant. WELCOME TO OHIO!