Linda,

I have a boy 7yrs old SWCAH. He also complains of headaches alot!!!!!!!!!!!! They come on all the sudden. I have taken him to the endo. She does not think it is caused by CAH, eye dr. no problem perfect vision, pediatrician  no problem. I think it is from the florinef. The eye dr. that had never heard of cah until that appt with my son in her theory said she believes it was from his electrolytes (probably spelled wrong). So we have been just dealing with them.  We have our labs in november which is awhile from now. Also he used to eat butter & pickles like crazy. He does not crave the salt either. Let me know what happens.

Jenny